Fuck AI

i’ll leave making lies up to all y’all

Orphan drugs cost millions per patient, sorry your ignorant, but this is reality, y'all:

Skyclarys (omaveloxolone) has a wholesale list price of approximately $370,000 to $399,180 per year

Zolgensma has a US list price of about $2.1 million for a single, one-time treatment.

Lenmeldy – $4.25 million (Metachromatic leukodystrophy)

Kebilidi – $3.95 million (AADC deficiency)

Hemgenix – $3.5 million (Hemophilia B)

Elevidys – $3.2 million (Duchenne muscular dystrophy)

Lyfgenia – $3.1 million (Sickle cell disease)

Skysona – $3.0 million (X-linked adrenoleukodystrophy)Zynteglo – $2.8 million (Transfusion-dependent beta thalassemia)

– ~$1.51M to $1.56 million per year (Generalized lipodystrophy)

Danyelza – ~$1.39M to $1.44 million per year (High-risk neuroblastoma)

Zokinvy – ~$1.30M to $1.44 million per year (Hutchinson-Gilford Progeria Syndrome)

Miplyffa – ~$1.30 million per year (Niemann-Pick disease type C)

Kimmtrak – ~$1.17 million per year (Metastatic uveal melanoma)

Folotyn – ~$1.01 million per year (Peripheral T-cell lymphoma)

Demser – ~$960k to $1.20 million per year (Pheochromocytoma)

Brineura – ~$916k to $1.02 million per year (CLN2 Batten disease)

Spinraza – ~$900,000 for the first year, then ~$450,000 annually after (Spinal muscular atrophy)

Blincyto – ~$905,000 per year (Acute lymphoblastic leukemia)Ravicti – ~$695,970 per year (Urea cycle disorders)

I am on a drug that the pharmaceutical bills insurance $500,000 per month for called Strensiq. This is not a lie, I have the EOBs.