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gonna be honest, i think the drug accelerates als.
Considering that micro brain bleeds are a common side effect. I don't see how it wouldn't ultimately do more harm than good.
I read all the documentation on that als drug. The people who wrote it said something like the micro brain bleeds were found with mri scans but cognitive testing didn't reveal that they caused any impairment.
I was like. Wtf.
Do these people not know how the brain works?
Damage is damage. Something has been lost. Regardless if a test found whatever that loss was or not.
Only broad extensive testing of multiple cognitive and motor functions could determine if the micro bleeds were or weren't doing harm. And there are complications with doing that much testing. Plus why would they want to uncover support for increased loss. ?
That was my first experience working in pharmaceutical research and it honestly has made me certain I never will work in pharm research again.
I wonder how many desperate people are paying for drugs with minimum therapeutic value and much higher risks than they think.
I feel like Alzheimer's drugs are predatory in nature because we KNOW that you can't reverse the damage. And there is ample evidence that the processes of dementia likely start in the 30s.
If there is any chance of treating/curing it, it's going to be identifying it early and treating it then. Like in the 30s. And there already is research on going in that area.
But greedy companies want to drain gramp's savings before he dies.
And also. The plaque and tau proteins are likely not the cause but a symptom. So drugs that target them are also probably worthless.
There is just so much research on this. It's unbelievable that they are pushing drugs to target the tau and plaque when we know that's not the cause.
weird enough, insurance covered it 100%. like, they covered all his als stuff 100%. i think it had to do something with the war.
I'm glad it was covered for yours. Some insurance is better than others.
thanks! it's a long and complicated story like it always is. Short version, dad was both in the military (which helped with the insurance, since ALS is considered a service related condition) and he was in a major ongoing medical study involving the brain, so i called in every favor i could in the insurance industry and believe me, i worked in medical accounting for a few decades i had a few levers i had been holding onto for emergencies. everything happened fast and smooth. couldn't have gotten better care for him.